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Volume 21, Issue 3
  • ISSN: 2666-0822
  • E-ISSN: 2666-0830

Abstract

Aim

The present qualitative study was carried out to clarify the experiences of mothers with respect to living with children with ASD.

Background

Limited studies have been conducted on the experiences of mothers and their challenges in living with children with Autism Spectrum Disorder (ASD) in western Iran.

Methods

A qualitative study utilizing the content analysis approach was designed to elucidate the experiences of mothers living with children with ASD. Participants were purposefully selected based on predefined criteria. The study was conducted from March to September 2023 at the Autism Spectrum Disorder Research Center in Hamedan, Iran. Sampling continued until data saturation was achieved. Interview transcripts were analyzed using a content analysis strategy, and main themes and subthemes were identified. MAXQDA version 10 software was used for data management during analysis.

Results

Twelve participants were enrolled in this study. Six main themes and 15 subthemes were identified, representing the challenges of mothers living with children with ASD in Iran. The study themes included personal development hindrance (constant engagement, reduced self-attention, limited personal activities), social non-acceptance (social isolation and others' judgmental behaviors), lack of support infrastructure (limited rehabilitation centers, limited care centers, and heavy financial burden), caretaking responsibility (constant worry for the child, stereotypical behaviors, and sleep disturbances in the child), constant attention requirement (continuous need for care and constant support), and unequal attention within the family (reduced attention to other children and decreased marital intimacy).

Conclusion

The results of this research have indicated that mothers of children with ASD experience high levels of physical and psychological stress and are vulnerable to harm. Therefore, providing supportive resources to ensure their mental well-being is essential.

© 2025 Bentham Science Publishers
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2024-07-31
2025-04-23

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References

  1. BeckK.B. ConnerC.M. BreitenfeldtK.E. NorthrupJ.B. WhiteS.W. MazefskyC.A. Assessment and treatment of emotion regulation impairment in autism spectrum disorder across the life span: current state of the science and future directions.Child Adolesc. Psychiatr. Clin. N. Am.202029352754210.1016/j.chc.2020.02.003 32471600
     [Google Scholar]
  2. MaennerM.J. WarrenZ. WilliamsA.R. Prevalence and characteristics of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, united states, 2020.MMWR Surveill. Summ.202372211410.15585/mmwr.ss7202a1 36952288
     [Google Scholar]
  3. SamadiS.A. McConkeyR. Screening for autism in iranian preschoolers: Contrasting M-CHAT and a scale developed in iran.J. Autism Dev. Disord.20154592908291610.1007/s10803‑015‑2454‑1 25911978
     [Google Scholar]
  4. SulaimaniM.F. GutD.M. Hidden curriculum in a special education context: The case of individuals with autism.J Educational Res Practice201991303910.5590/JERAP.2019.09.1.03
     [Google Scholar]
  5. DuarteC.S. BordinI.A. YazigiL. MooneyJ. Factors associated with stress in mothers of children with autism.Autism20059441642710.1177/1362361305056081 16155057
     [Google Scholar]
  6. BenderixY. NordströmB. SivbergB. Parents’ experience of having a child with autism and learning disabilities living in a group home: A case study.Autism200610662964110.1177/1362361307070902 17088278
     [Google Scholar]
  7. RamzanlouM. MaaliK.A. BagheriF. MeiliS.R. The lived experience of mothers of children with autism spectrum disorder: A phenomenological study.Quart Psychol Exceptional Individuals20201039133174
     [Google Scholar]
  8. HollowayI. GalvinK. Qualitative research in nursing and healthcare.John Wiley & Sons2023
     [Google Scholar]
  9. VaismoradiM. TurunenH. BondasT. Content analysis and thematic analysis: Implications for conducting a qualitative descriptive study.Nurs. Health Sci.201315339840510.1111/nhs.12048 23480423
     [Google Scholar]
  10. GraneheimU.H. LundmanB. Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness.Nurse Educ. Today200424210511210.1016/j.nedt.2003.10.001 14769454
     [Google Scholar]
  11. VaismoradiM. JonesJ. TurunenH. SnelgroveS. Theme development in qualitative content analysis and thematic analysis.J. Nurs. Educ. Pract.20166510011010.5430/jnep.v6n5p100
     [Google Scholar]
  12. LincolnY. GubaE.G. Naturalistic Inquiry New bury Park.CASage Publications1985
     [Google Scholar]
  13. MicsinszkiS. The lived experience of mothering a child with autism: a hermeneutic phenomenological understanding.2014Available from: https://dr.library.brocku.ca/handle/10464/5629
    [Google Scholar]
  14. LeeG.K. CurtissS.L. KuoH.J. ChunJ. LeeH. NimakoD.D. The role of acceptance in the transition to adulthood: A multi-informant comparison of practitioners, families, and youth with autism.J. Autism Dev. Disord.20225241444145710.1007/s10803‑021‑05037‑1 33942187
     [Google Scholar]
  15. RamezanlooM. Abolmaali AlhosseiniK. BagheriF. RobatmiliS. Lived experience of mothers’ children with autism spectrum disorder: A phenomenological study.JPE20201039133174
     [Google Scholar]
  16. AbadiR.K. PouretemadH. TahmasianK. ChimehN. A comparative study of parental stress in mothers of autistic and non autistic children.J. Fam. Res.200953387399
     [Google Scholar]
  17. LudlowA. SkellyC. RohlederP. Challenges faced by parents of children diagnosed with autism spectrum disorder.J. Health Psychol.201217570271110.1177/1359105311422955 22021276
     [Google Scholar]
  18. CidavZ. MarcusS.C. MandellD.S. Implications of childhood autism for parental employment and earnings.Pediatrics2012129461762310.1542/peds.2011‑2700 22430453
     [Google Scholar]
  19. GomesP.T.M. LimaL.H.L. BuenoM.K.G. AraújoL.A. SouzaN.M. Autism in brazil: A systematic review of family challenges and coping strategies.J. Pediatr.201591211112110.1016/j.jped.2014.08.009 25499896
     [Google Scholar]
  20. HoogsteenL. The lived experience of parenting a child with autism in a rural area: making the invisible, visible.CanadaUniversity of Manitoba2011
     [Google Scholar]
  21. CorcoranJ. BerryA. HillS. The lived experience of US parents of children with autism spectrum disorders: A systematic review and meta-synthesis.J. Intellect. Disabil.201519435636610.1177/1744629515577876 25819433
     [Google Scholar]
  22. RiahiF. KhajeddinN. Izadi MazidiS. EshratT. Naghdi NasabL. The effect of supportive and cognitive-behavior group therapy on mental health and irrational believes of mothers of autistic children.Majallah-i Ilmi-i Pizishki-i Jundi/Shapur2012106637645
     [Google Scholar]
  23. BensonP.R. Coping, distress, and well-being in mothers of children with autism.Res. Autism Spectr. Disord.20104221722810.1016/j.rasd.2009.09.008
     [Google Scholar]
  24. FismanS.N. WolfL.C. NohS. Marital intimacy in parents of exceptional children.Can. J. Psychiatry198934651952510.1177/070674378903400607 2527593
     [Google Scholar]
  25. ChanK.K.S. LeungD.C.K. The impact of child autistic symptoms on parental marital relationship: Parenting and coparenting processes as mediating mechanisms.Autism Res.20201391516152610.1002/aur.2297 32314878
     [Google Scholar]
/content/journals/cprr/10.2174/0126660822305755240730105321
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Exploring Mothers' Challenges in Living with Children with Autism Spectrum Disorders: A Content Analysis Study
Curr Psyc Res Rev 21, 371 (2025); https://doi.org/10.2174/0126660822305755240730105321
/content/journals/cprr/10.2174/0126660822305755240730105321
/content/journals/cprr/10.2174/0126660822305755240730105321
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  • Article Type:     Research Article
Keyword(s): Autism spectrum disorders; caretaking responsibility; mental well-being; mothers' challenges; personal development hindrance; physical and psychological stress

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